Caregiver resources: Supporting you as you support others

Here is a list of useful tools and services that can offer financial, emotional, and practical support, so you can continue to care for your loved one.

1. Protect your job while caring for loved ones

The Family and Medical Leave Act (FMLA) lets eligible employees take up to 12 weeks of unpaid leave each year to care for a seriously ill family member. This can help if you need time away from work to handle doctor visits, hospital stays, or home care, without worrying about losing your job.

How to use it: Talk to your HR department to see if your company qualifies for FMLA. Keep in mind that this benefit is for larger companies and has specific requirements. If you’re balancing work and caregiving, this is a great option to explore.

2. Stay connected with family and friends

CaringBridge is a free website that helps people stay connected during tough times. Caregivers can create personal pages to share health updates and stories, making it easier to keep family and friends informed.

How to use it: Go to CaringBridge.org to create your own page and start the conversation.

3. Explore financial help from your state

Some states offer direct financial help for caregivers, knowing how costly caregiving can be. These programs can make it easier to afford medical supplies, get extra help, or take time off when needed.

How to use it: Check with your state’s Department of Health and Human Services or use the Eldercare Locator for details. The type of help varies, so look into what your state provides.

4. Find federal and local support

The USA.gov Disability Resources page is a guide to federal, state, and local programs that offer financial assistance, healthcare benefits, and legal protections for caregivers and their loved ones.

How to use it: Visit USA.gov Disability Resources to explore financial aid, healthcare programs, and legal help.

5. Get emotional and practical help

CancerCare offers free services like counseling, support groups, and educational workshops. Their trained social workers can connect caregivers with mental health professionals and other support networks, which can help with the stress and emotional strain of caregiving.

How to use it: Visit CancerCare’s website to see their resources or speak to a social worker for personal support.

6. Access to food support

Making sure there is enough food in the house can be hard when you’re busy caring for someone. Programs like SNAP (Supplemental Nutrition Assistance Program) and Meals on Wheels can help provide food to those who need it. While caregivers can apply for SNAP on behalf of a loved one who qualifies, these benefits are only for the person with the need. Meals on Wheels delivers food to people who qualify, like those who live alone or with a spouse who also qualifies. Caregivers usually need to live with the person to be eligible for Meals on Wheels.

How to use it: Apply for SNAP benefits through your state’s website or check eligibility for Meals on Wheels at MealsonWheelsAmerica.org. These programs can help make sure there’s food available and reduce the worry about meal prep.

7. Connect with others for support

Caregiving can feel lonely, but talking to others who understand your situation can be comforting. Joining a support group or speaking with a counselor can help you manage stress and feel less alone.

How to use it: Look for support groups through organizations like the National Alliance for Caregiving or Cancer Support Community. Hospitals and cancer centers may also have counseling services for caregivers.

8. Take some time to rest while your loved one is cared for

Respite care offers a break for caregivers by providing temporary care for your loved one, even in your home. It gives you time to rest, attend to other tasks, or just indulge in a favorite self-care activity. This service can be essential to prevent burnout.

How to use it: Search for respite care services through your local Area Agency on Aging or the ARCH National Respite Network. Some state programs and insurance plans may help cover these services.

9. Access professional advice for important decisions

Taking care of legal and financial matters, such as getting a power of attorney or making insurance decisions, can be tough. Getting professional help can give you peace of mind and make sure everything is in order.

How to use it: Reach out to the National Academy of Elder Law Attorneys (NAELA) for help finding a lawyer or visit the Cancer Legal Resource Center for free advice and support.

10. Manage tasks with technology

Technology can make caregiving tasks like managing medications, tracking health records, or remembering appointments much easier. Apps like Medisafe and CareZone keep everything organized so you don’t have to rely on memory alone.

How to use it: Download Medisafe or CareZone from your app store. These apps help you stay on top of daily caregiving tasks and communicate with doctors more easily.

11. Obtain confidential work-life support services

Many companies have Employee Assistance Programs (EAPs) that offer free, private counseling and support services for employees. EAPs can help you handle work-life balance issues, financial stress, and other caregiving challenges.

How to use it: Ask your HR department if your company has an EAP. You can usually access services through a hotline or website, and it’s confidential.

These resources are here to support you in every part of your caregiving journey, from managing daily tasks to taking care of your emotional needs. Remember, asking for help isn’t a weakness. It’s an important step to making sure you have the strength and energy to keep caring for your loved one.

 

To support your well-being as a caregiver, remember that taking care of yourself is essential. For practical self-care tips and strategies, visit Prioritize Yourself: Self-Care Tips for Breast Cancer Caregivers.