Caring for yourself while caregiving
- Medical Review: Kelly Grosklags, LICSW, BCD, FAAGC, FT
Breast cancer treatment can take many months, and it sometimes take years. The other parts of your life will go on, but caring for your loved one means you may have less time or energy for other things. To be able to give your loved one the attention and support you really want to, it is important to care for yourself. Here, we’ll share some ways you can take care of your physical, mental, and spiritual health.
Talk to someone
“It’s essential that caregivers get support,” says Ms. Grosklags. “Find someone outside of the caregiving relationship who you can talk to. This might be someone in your faith community, a best friend, or therapist.” Make this easy on yourself, adds Ms. Grosklags, and consider what resources you already have in your life. Maybe you have a walking group or another friend group you talk with regularly. “It only takes one person who is trusted,” she says. Local caregiving support groups through communities and nonprofits can also fill this role. “You likely already have resources in your life. Start there.”
Accept help
Caregiving can involve many roles and responsibilities that can be challenging for one person to fulfill, particularly if you are also employed or caring for other people, such as children. Just like you give your loved one the chance to tell you about things they need help with, you can accept help from others. Additional family members may be able to take on chores or give you space to do things that are just for you. Be prepared for when someone asks, “How can I help?” by having a specific list. Maybe you need help picking up prescriptions, shopping, or caring for pets, for example.
Be realistic
It can help to remember that even if it sounds like a cliché, there really is only so much you can accomplish in a single day. Have realistic expectations of yourself. Set practical, achievable goals, but also be kind to yourself if things slip through the cracks or don’t work out as you had hoped. As you care for a loved one, you are giving greatly of yourself, and showing love and respect. Take a pause to remember all the ways you are helping, and the difference you’re making every day. This can make it a little easier to move on from disappointments without shame or guilt.
Thank you for being my caretaker when no one else was around, for being there to hear me cry and scream, and for doing things you didn't have to do. I seriously wouldn't have made it without you!
Accept and allow your emotions
Caregiving brings up a lot of emotions, says Ms. Grosklags. “There can be moments of joy, followed by guilt. Emotions become complex when we judge them or shame ourselves for having them. Embrace the emotions, hold them, and don’t try to figure them out. You get to have these emotions. A scary experience is happening to someone you care for deeply. You would expect there to be a variety of reactions.” Talk to someone so that your emotions have an outlet. If you are concerned that you are experiencing depression or anxiety, let your doctor know. Some emotions may have a medical basis that needs to be addressed.
Keep up with your health
Maintaining your physical health is a priority, for you own sake and for your loved one, too. Prioritize healthy meals, exercise, quality sleep, and some down time. Don’t hesitate to ask for and accept support to help you make those things happen. Continue to see your own healthcare professional for regular check-ups and preventive care.
Manage stress
Caregiver stress is real, on both emotional and physical levels. All of the above strategies can help you to lower stress. This includes accepting help, prioritizing your own wellness, and allowing room for your emotions without judging them. Here are some other ways to help lower caregiver stress:
- Look for help in your community. Meal delivery options, transportation, and legal or financial counseling may be available. Respite care is also a possibility. A certified respite care provider is someone who can stay with your loved one while you take a break. Ask your doctor or a social worker for lists of resources. Or better yet, ask someone else to do this research for you.
- Learn more about caregiving. Practical advice from doctors may be useful. Some hospitals offer classes that can teach you how to care for someone with cancer. To find classes, ask your loved one’s medical team.
- Make to-do lists and set a daily routine.
- Stay in touch with family and friends, and do things you enjoy with your loved ones.
- Watch for signs of stress overload*. These can include:
- Feelings of helplessness
- Anxiety
- Irritability
- Strong or frequent feelings of anger
- Sleeping difficulties
- Health issues such as heartburn or catching repeated colds
- Avoiding social situations
- Drug or alcohol abuse
If you are experiencing any of these, seek help from healthcare professionals, a therapist or counselor, family members, or friends. Ask your loved one’s care team about caregiver support groups — these are widely available in hospital systems. We’ve also included some online support group resources below. Caregiver stress is extremely common, and you are not alone. Reach out for support if you are feeling overwhelmed and unable to cope.
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- tracer
- traditional acupuncture
- tranquilizer
- transdermal
- transfusion
- transitional care
- translational research
- trastuzumab
- trauma
- treatment field
- trigger
- trigger point acupuncture
- triple-negative breast cancer
- tumescent mastectomy
- tumor
- tumor antigen vaccine
- tumor board review
- tumor burden
- tumor debulking
- tumor load
- tumor marker
- tumor volume
- Tykerb
- ulcer
- ulceration
- ultrasound-guided biopsy
- ultrasound/ultrasonography
- ultraviolet radiation therapy
- uncontrolled study
- undifferentiated
- unilateral
- unilateral salpingo-oophorectomy
- unresectable
- unresected
- upstaging
- urticaria
- VACB
- vaccine therapy
- vacuum-assisted biopsy or vacuum-assisted core biopsy
- Valium
- vancomycin
- vandetanib
- vascular endothelial growth factor-antisense oligonucleotide
- vascular endothelial growth factor receptor tyrosine kinase inhibitor
- vein
- Velban
- venipuncture
- venous sampling
- Versed
- vertebroplasty
- vinorelbine
- vital
- vomit
- watchful waiting
- wedge resection
- Wellcovorin
- Western medicine
- WGA study
- white blood cell
- whole cell vaccine
- whole genome association study
- wide local excision
- wire localization
- wound
- X-ray therapy
- Xanax
- Xeloda
- xerostomia
- Xgeva
- yoga
- ziconotide
- Zinecard
- Zofran
- zoledronic acid
- Zoloft
- Zometa
Living Beyond Breast Cancer is a national nonprofit organization that seeks to create a world that understands there is more than one way to have breast cancer. To fulfill its mission of providing trusted information and a community of support to those impacted by the disease, Living Beyond Breast Cancer offers on-demand emotional, practical, and evidence-based content. For over 30 years, the organization has remained committed to creating a culture of acceptance — where sharing the diversity of the lived experience of breast cancer fosters self-advocacy and hope. For more information, learn more about our programs and services.