Blogs > Tools in the coping toolkit
Tools in the coping toolkit
- BY: Lynn Folkman
- 04/07/20
Lynn Folkman, Living Beyond Breast Cancer's Community Engagement Manager, had to postpone her scheduled mammogram and MRI due to COVID-19 safety measures. In this uncertain time, Lynn shares the coping tools in her toolkit that have worked for her since an early-stage breast cancer diagnosis in 2009. Watch her vlog, or read the full transcript below.
Hi, I'm Lynn Folkman and I am manager of community engagement at Living Beyond Breast Cancer. In 2009 I was diagnosed with stage one ER/PR, HER2-positive breast cancer.
Since that diagnosis, my follow up with my oncologist has been 6-month MRI and then 6-month mammogram. The reason for that is because a mammogram did not initially catch my breast cancer. Late last year I had a suspicious MRI and I had some follow-up testing and thankfully it turned out to be nothing.
But now my course of treatment coming due is an MRI and a mammogram, which is indefinitely on hold at this point in time due to COVID-19, and even if I had a choice to go into a hospital right now, I don't think I would want to do so.
It's really uncertain and a little scary for me because these tests served as a safety net. I started to think about, in 2009 what my coping skills were and what my lessons were and I think I gained a lot more coping skills after I was diagnosed with breast cancer, in a situation that felt really uncertain and really unknown.
For me what worked is I look at how much energy I have in a given day and I get to choose how I want to spend that energy in my thoughts, in the people that I surround myself with — now virtually — and I alone get to make those choices to find what works for me. For me personally, what works is I need to journal and meditate to get those really busy thoughts out of my head. I need to get out in the sunshine and walk. I need to rest when I'm tired. I need to move my body and eat when I'm hungry. In these uncertain times, that gives me a sense of control over what's a really uncontrollable situation.
I think at times we are so good at being kind to others and I think right now it's really important to be kind to ourselves.
We're all different. What I encourage you to do is find things that work for you as an individual to give you peace and comfort in these really uncertain times. Be well.
- Has worked at LBBC since 2012
- Was diagnosed with early-stage breast cancer in 2009 at the age of 46
- Is interested in holistic wellness and spiritual exploration
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- raloxifene hydrochloride
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- receptor
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- reconstructive surgeon
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- recurrent cancer
- referral
- reflexology
- refractory
- refractory cancer
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- regional
- regional anesthesia
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- regional chemotherapy
- regional lymph node
- regional lymph node dissection
- registered dietician
- regression
- rehabilitation
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- relapse
- relative survival rate
- relaxation technique
- remission
- remission induction therapy
- remote brachytherapy
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- resectable
- resected
- resection
- residual disease
- resistant cancer
- resorption
- respite care
- response rate
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- retrospective study
- risk factor
- Rubex
- salpingo-oophorectomy
- salvage therapy
- samarium 153
- sargramostim
- scalpel
- scan
- scanner
- scintigraphy
- scintimammography
- sclerosing adenosis
- screening
- screening mammogram
- second-line therapy
- second-look surgery
- second primary cancer
- secondary cancer
- secrete
- sedative
- segmental mastectomy
- selection bias
- selective estrogen receptor modulator
- selective serotonin reuptake inhibitor
- sentinel lymph node
- sentinel lymph node biopsy
- sentinel lymph node mapping
- sepsis
- sequential AC/Taxol-Trastuzumab regimen
- sequential treatment
- SERM
- sertraline
- Serzone
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- sexuality
- sibling
- side effect
- silicone
- simple mastectomy
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- sleep disorder
- social service
- social support
- social worker
- sodium thiosulfate
- soft tissue
- solid tumor
- somatic
- somatic mutation
- sorafenib
- specialist
- specificity
- spiculated mass
- spinal anesthesia
- spinal block
- spiral CT scan
- spirituality
- sporadic cancer
- SSRI
- stable disease
- stage
- stage 0 breast carcinoma in situ
- stage 0 disease
- stage I breast cancer
- stage IA breast cancer
- stage IB breast cancer
- stage II breast cancer
- stage II breast cancer
- stage IIA breast cancer
- stage IIB breast cancer
- stage III breast cancer
- stage III lymphedema
- stage IIIA breast cancer
- stage IIIB breast cancer
- stage IIIC breast cancer
- stage IV breast cancer
- staging
- stamina
- standard of care
- standard therapy
- statistically significant
- stent
- stereotactic biopsy
- stereotactic radiosurgery
- sterile
- sternum
- steroid
- stress
- strontium
- study agent
- subcutaneous
- subcutaneous port
- subjective improvement
- subset analysis
- supplemental nutrition
- supplementation
- support group
- supportive care
- supraclavicular lymph node
- surgeon
- surgery
- surgical biopsy
- surgical menopause
- surgical oncologist
- survival rate
- symptom
- symptom management
- symptomatic
- synergistic
- synthetic
- syringe
- systemic
- systemic chemotherapy
- systemic disease
- systemic therapy
- TAC regimen
- tai chi
- tailored intervention
- talk therapy
- tamoxifen
- targeted therapy
- taxane
- Taxol
- Taxotere
- Tc 99m sulfur colloid
- technician
- terminal disease
- therapeutic
- therapeutic touch
- therapy
- thermography
- thiethylperazine
- thiotepa
- third-line therapy
- thrush
- time to progression
- tinnitus
- tissue
- tissue flap reconstruction
- TNM staging system
- tomography
- tomotherapy
- topical
- topical chemotherapy
- topoisomerase inhibitor
- total estrogen blockade
- total mastectomy
- total nodal irradiation
- total parenteral nutrition
- toxic
- toxicity
- tracer
- traditional acupuncture
- tranquilizer
- transdermal
- transfusion
- transitional care
- translational research
- trastuzumab
- trauma
- treatment field
- trigger
- trigger point acupuncture
- triple-negative breast cancer
- tumescent mastectomy
- tumor
- tumor antigen vaccine
- tumor board review
- tumor burden
- tumor debulking
- tumor load
- tumor marker
- tumor volume
- Tykerb
- ulcer
- ulceration
- ultrasound-guided biopsy
- ultrasound/ultrasonography
- ultraviolet radiation therapy
- uncontrolled study
- undifferentiated
- unilateral
- unilateral salpingo-oophorectomy
- unresectable
- unresected
- upstaging
- urticaria
- VACB
- vaccine therapy
- vacuum-assisted biopsy or vacuum-assisted core biopsy
- Valium
- vancomycin
- vandetanib
- vascular endothelial growth factor-antisense oligonucleotide
- vascular endothelial growth factor receptor tyrosine kinase inhibitor
- vein
- Velban
- venipuncture
- venous sampling
- Versed
- vertebroplasty
- vinorelbine
- vital
- vomit
- watchful waiting
- wedge resection
- Wellcovorin
- Western medicine
- WGA study
- white blood cell
- whole cell vaccine
- whole genome association study
- wide local excision
- wire localization
- wound
- X-ray therapy
- Xanax
- Xeloda
- xerostomia
- Xgeva
- yoga
- ziconotide
- Zinecard
- Zofran
- zoledronic acid
- Zoloft
- Zometa
Living Beyond Breast Cancer is a national nonprofit organization that seeks to create a world that understands there is more than one way to have breast cancer. To fulfill its mission of providing trusted information and a community of support to those impacted by the disease, Living Beyond Breast Cancer offers on-demand emotional, practical, and evidence-based content. For over 30 years, the organization has remained committed to creating a culture of acceptance — where sharing the diversity of the lived experience of breast cancer fosters self-advocacy and hope. For more information, learn more about our programs and services.